Thursday, January 31, 2008
Thursday, January 24, 2008
I don't know how many times I've heard that phrase. Usually followed by some sort of praise or comment about how strong I/we are. But, that's not the case.
When I was pregnant with Nicky, the AFP indicated possibility that he had Down Syndrome. Throughout the pregnancy I prayed he didn't have Down Syndrome since I was sure that I couldn't handle it.
When Nicky was first born (at at times since then) I've been totally overwhelmed by the thought of the future and was sure I couldn't handle it. While he was still in the hospital I joined several Down Syndrome news groups, mailing lists and online forums. The information and new words were overwhelming, IFSP, OT, PT, IEP, hypothyroidism, hear defect, Hirshsprung's... the list goes on and on. Before leaving the hospital we were referred to early intervention, a program that provides therapy in home to children under the age of three with birth defects, and delays. we were also given paper work to apply for Medicaid for Nicky.
Once Nicky was home we realized that caring for a baby with Down Syndrome isn't all that different than a typical one. He was a little more floppy, we were worried about weight gain and he had a few more doctor's appointments. But day to day it was the same. I learned I could handle a child with special needs at home.
When Nicky was a month old we had our first visit from EI. A caseworker came with a nurse and a special educator. They complemented us on Nicky, how cute he was, all the things a new mother loves to hear. They suggested because of his tone we should have an evaluation by a physical therapist. She came a few weeks later and we started into the whirl of therapy, by the time Nicky was three he had 4 therapy appointments a week. But, along the way I learned that I could handle therapy and a child with special needs.
Turning three means a transition from EI to the school system as the provider of therapy and education for a child with a disability. For about a year before hand I was very apprehensive about the transition. The terms were sometimes different and the process was slightly different but the end result was the same, a group of therapists and teachers working towards Nicky reaching his full potential. Afterwards, I realized that my apprehension for Nicky's transition from EI to the school system was very similar to the transition of my older kids from preschool to kindergarten. And I learned I could handle a Nicky and the school.
Nicky's future as a teenager or an adult with a disability do overwhelm me at times. But, I realize that by that time I will be the parent of a adult with a disability not the parent of a preschooler. And I will be able to handle him and whatever come.
Wednesday, January 23, 2008
Cate's post on cleaning reminded me of my own adventure cleaning before Christmas.
It all started when I went into the junk heap basement store room looking for Christmas decorations and couldn't even reach them. A fit of recycling, tossing out, trips to Goodwill ensued. Not sure why we had saved every box from every electronic, computer, peripheral we have bought, but we did. Out they went.
The 6 boxes of stuff that were moved unopened from California containing hubby's bachelor kitchen equipment were dispatched to Goodwill.
Turns out the kitchen boxes contained dishes that my MIL had collected week by week with a grocery store coupon. Could I possibly check with Goodwill and see if they still have them?
Over to the drop off location. The truck has been sent on.
Over to the nearby store. Meet a very nice lady named Peggy who called the central office and see where the truck ended up. Go home and find a box with 10 diner plates.
Call Peggy again, still no news.
Go back to the store the next morning. Good news the truck ended up there! Buy back the dinner plates, bread plates, and cups & saucer. No bowls, though.
Tell hubby couldn't find bowls. He says "oh yeah Mom never bought bowls."
I'm not sure what the moral should be? Never get rid of anything? or Ask hubby first?
Oh the storeroom still contains an old furnace we kept when we replaced when the A/C died a month after we bought the house, since we might some day build a vacation home and need it. Ditto the oven & cook top from when we remodeled the kitchen.
Last week, I had to cancel a dentist appointment because Nicky had strep. I called and rescheduled it the same day. I could have sworn that the receptionist said Wednesday the 23. But it turns out that it was Wednesday the 30th. That I didn't called to confirm yesterday should have been a clue. Oops, showed up today and was told it's next week.
Monday, January 21, 2008
"Here, hold this fire extinguisher in case the wiring starts to spark while I flip the light switch."
"That hump in the floor should go away after I put the header in and take the jacks down."
Yes, hubby is redoing the basement, including replacing headers, sure hope he knows what he's doing.
Sunday, January 20, 2008
Since this is sort of a knitting blog as well, here's a peek at some of the WIPs that aren't my children.
I've been playing around with mitered squares lately. Here are some knit with Patons SWS. Someday they may end up as an afghan. Don't know if it will be ugly or just interesting. M.E. has been playing with different layouts. I still have a lot of squares to go and not sure if there will be a border between squares or just around the edges. I debated between stockinet and garter mitered squares and ended up liking the feel of stockinet better. But they are slightly trickier to knit.
The beginnings of a baby sweater for a co-worker of K's. I fell in love with the feel of Berroco Comfort. It's worsted weigh nylon/acrylic. I was looking for something in a nice supper-wash wool but nothing struck my fancy. This pattern was originally written for DK, so the fabric may be too stiff. Plus the yarn is more than a little splitty.
Argh, in looking for a link I noticed that a DK weight is available as well. Didn't see that at the yarn store.
Saturday, January 19, 2008
Some time ago Beth at Not That You Asked tagged me with a meme to list 7 random/weird things about me. So here goes:
1. I have a weird fetish about double light switches. We have one in the hall at the top of the stairs that controls the upstairs hall light and the foyer light. Both switches have to be in the up or down position, not mixed, I'll even climb stairs to change them.
2. I was an organic chemist in a previous life. I once set a fume hood on fire when potassium metal boiled out the end of a condenser tube. I used a one of those solid fire extinguishers to put it out. There is a cartridge that needs to be replaced after they have been fired. Someone forgot to do it, the next lab fire was pretty serious and the solid fire extinguisher wouldn't work. The entire building was evacuated because of the fire. Fortunately, it was put out.
3. My job was eliminated while one maternity leave with my daughter, I'd really wanted to quit but it still hurt to be fired. The 6 months severance did help ease the pain.
4. I've been pregnant 10 times, but only 3 live children. During my last pregnancy we filled up all the spaces on form.
5. My middle child's name came to me in a dream about Nathaniel Hawthorne. Otherwise, he would have been Nicholas, which we then used for Nicky.
6. I can't stand the taste of celery, don't like the texture much either.
7. I've never been on a diet per se, I'm now 30 pounds more than when I got married, I really need to work on eating healthier, but I like to bake too much.
I'm not sure there are any readers anymore so, if you read this consider yourself tagged.
The other night Nicky wandered into the kitchen and saw that I was making dinner. He sat at his seat for a moment, then picked up his plate, silverware, and napkin. Carried them back into the family room and set the picnic table set up in front of the T.V.
Here are 8 of the 24 dish clothes I knit for teacher & friend holiday gifts. I packed them with a bar of melt & pour soap. However, it's obvious from some of the thank you notes that the recipients had no idea what the dish clothes were. Several thanks were for a "cozy", what's a cozy?
We've been working on potty training for over 6 months now and are on a plateau now. Before Winter, break Nicky was using the potty regularly at school. Over break he was sick and I was lazy resulting in regression. Since school has been back in session school has had mixed results. He is starting to tell us AFTER he's gone. Progress? He is getting mixed messages by my slacking off at home. I wonder if he is developmentally ready or not. He certainly can hold his urine for several hours and is aware but it resistant. Oh well, no one ever said it would be easy.