Friday, March 27, 2009


I'm struggling a bit with Nick's placement for next year. I'm pretty sure it's the right choice, but have reservations. It feels a bit like a step backwards. Right now, he's in full inclusion in a pre-K class. The recommendation is to put him in a self contained special education class that is partnered with a regular education kindergarten class. Initially, he'll have a minimum of 1 hour per day of regular education instruction along with going to "specials" with the regular education class. I met and saw in action the teacher Nick is likely to have. She's fantastic, and is probably a good fit for him. In know, he'll get a lot more one-on-one instruction which he really needs. But, it's still not inclusion. I have to remember inclusion is what I want and not what Nick may need.

It's never easy is it?

Thursday, March 26, 2009

He is Down Syndrome - not

When I first heard of people first language, it seemed a too politically correct. However, the further we get into this journey the more it makes sense.

This morning, I talked with a gentleman with an older child with DS. He said "my daughter is Down Syndrome." And then talked about someone else who "is Down Syndrome." It bothered me, a lot.

Driving home, I got to thinking about people first language and how someone isn't a label and that they are so much more than a label. Nick isn't Down Syndrome, he's Nick. But, I'm also guilty of not using people first language. Nate has a friend who's bipolar, or rather has bipolar disorder. We have another friend who is dyslexic, or rather has dyslexia. Both of these children are so much more than their disorders or disabilities.