Falling Asleep

Nick has been having trouble falling asleep lately. Sometimes, to get him to sleep at a reasonable time I'll lay down with him. It is an amazing thing to watch him fall asleep, one minute he's giggling or popping up and down and then next he's sound asleep. It's just that quick, in one instant from awake to asleep.

Be Silly

Yesterday after Nick came home from school, I asked him what he wanted to do, play a game? go outside & swing? watch Super Why? No. "Be silly" which meant rolling around on the floor giggling. Silly boy. He also told me that he'd gone bowling and seen his teacher from last year. I love when he shares what happened at school. He doesn't always, just the things that are important to him.

School Drop Off

Nick is at a nearby elementary that is not our home school. One of the 5th graders who's on safety patrol lives in our neighborhood and knows Nick from the pool. Whenever P is on duty when we drop Nick off she makes it a point to come to the car to help him out. This morning she was there and as soon as Nick saw P he had the biggest smile on his face that lasted until he walked into school and I could no longer see him.

It just made my day!

Bad Mommy Moments

We've had a couple of incidents lately that show Nick's developing skills and independence and also that we've gotten a little lax.

Last week, at the rehearsal for M.E.'s high school drama production at a local church, Nick decided it was time to go, picked up my purse, walked to the elevator, pushed the correct buttons to call the elevator and get to the first floor. Then he walked out through the parking lot to our van. Fortunately, the church has a security guard who patrols the parking lot who'd grabbed Nick before any harm could come to him.

Then Sunday afternoon, Nick plugged the iron in and managed to burn himself and the ironing board cover.

Sigh.

Katie Beckett

Nick is eligible for, and has so far been approved for a Katie Beckett (or Deeming) waiver, which helps pay some of the bills that our insurance won't cover. It is essentially medicaid for disabled children who's parents make too much money to be covered by medicaid.

When Nick was in early intervention it paid the co-pays for therapy which were substantial, at one point about $800 per month. Since he's started school, the therapies are done at school and we aren't billed. We did use it for extra PT the first year Nick was in school and for his orthotics which our insurance didn't cover.

Every year there is an annual review, which freaks me out more than any thing else, I don't find taxes anywhere as, um, taxing. And every year I debate whether to apply for it.

Anyway, the review papers came the last day of school. Of course, Nick was late for his annual physical and his doctor had retired. Plus, I didn't have a current copy of his IEP. I managed to get everything, doctor visit included done and sent everything off in the mail this morning. Then came home and realized I forgot a copy of Nick's insurance card. Argh!

Dentist

Nick seems to take after his big brother in being slow to lose teeth and having lots of crowding. His bottom front teeth had started to come in even though his baby teeth haven't fallen out yet. So, this morning it was off to the dentist to have them extracted. With a little laughing gas he did very well. Even following directions to bite down on the cotton. I'll have to post of picture of his new grin once it looks less gruesome.

Suddenly

Nick's speech has improved so much in the past few months. He's really trying to make himself understood, to speak clearly and slowly. His favorite movie of the moment is Finding Nemo, and he's obsessed with the diver and mask. So, he's worked so hard to say diver, repeating it over and over. Today, I noticed he's starting to pick up the syllables that he often dropped in words and to pick up words in phrases he often left out. So, bu-els have become bubbles, pole has become ishing pole and the movie "Sages" has become "Ice Age."

I miss sages a bit tho.

Sweet Moment

The other night at bed time, Nick patted the rocking chair and said "sit." So I sat. Then he climbed into my lap and said "sing." So, I did. I know it was partly a tactic to delay bedtime, but, it was a sweet moment, one I miss as the kids get bigger and bigger.

The next day, I was singing in the car and he said "no, sing moma." So, I kept on singing.

Another Milestone of Sorts

This morning, Nick had his p.j. top on inside out. My guess is that he took it off and then put it back on inside out! He's doing really well on dressing. Sometimes get things on backwards, but hey, sometimes I do that too! Now to work on socks.

What a Difference a Year Makes

Yesterday, Nick had an appointment to be casted for a new pair of SMOs. He did really well, protesting a bit but not screaming the entire time. The orthotist remembered us from last year and commented on how much Nick had grown and how well he was walking. It's hard to believe it's only been a year that he's been walking. There was a time when I wondered if he would ever walk, now, I almost can't remember him not walking.

This time last year, Nick was starting to but 2 & 3 word phrases together. But, the words were one syllable or one syllable of a longer word and the phrases were often echos. Now, he's putting together real sentences with multiple syllable words. The other night in the bath he said "Go way, no wash my hair." He's also started to answer questions about things that happened. We're not quite to being able to ask him about his day but, occasionally, he'll tell us about something big that happened at school. And he actually answered a question in circle time at school.

Last year we were working on potty training but not seeing much success. Now, he mostly goes on demand and stays dry as long as we put him on the potty. Now, he can undress himself. The other day he pulled down his pants & pullup and peed on the potty all his own.

Self help skills are coming along, he has mastered a fork and spoon and eats cereal with a minimum of mess. He drinks from an open cup without spilling. Undresses himself, of course, I often find him naked in the bath tub! He knows to cover his mouth when he coughs and mostly to use tissues to wipe his nose.

When you have a child with delays, it's hard to see progress. Perhaps we need to take a longer view more often.

Struggling

I'm struggling a bit with Nick's placement for next year. I'm pretty sure it's the right choice, but have reservations. It feels a bit like a step backwards. Right now, he's in full inclusion in a pre-K class. The recommendation is to put him in a self contained special education class that is partnered with a regular education kindergarten class. Initially, he'll have a minimum of 1 hour per day of regular education instruction along with going to "specials" with the regular education class. I met and saw in action the teacher Nick is likely to have. She's fantastic, and is probably a good fit for him. In know, he'll get a lot more one-on-one instruction which he really needs. But, it's still not inclusion. I have to remember inclusion is what I want and not what Nick may need.

It's never easy is it?

Today...

What a busy day...

• Did four loads of laundry, folded and put away.
• K took Nate to the Lego store to use a gift certificate from LAST Christmas. He bought a small Star Wars ship, a small Mars Mission ship, a large grey baseplate, and a small pick-a-brick. Took him nearly an hour to pick it all out. He's a careful shopper when he's using his own or gift money.
  
• I took M.E. to REI to look for a jacket. Ended up with a North Face furry fleece. "Everyone" has North Face. Nick crawled in a tent and wouldn't come out. He was also kept escaping every time I turned my back, fortunately, he's not quiet and I could find him pretty quickly.
• Baked cornbread and pumpkin muffins.
• Made sweet potato casserole and squash delight casserole.
• Made Shrimp & Hot Root Soup and the Abbots Special Abbey Trifle from the Redwall cookbook. The custard for the trifle didn't set up. Not sure what went wrong. The custard had some solid chunks in it that I pushed through the strainer. Oh well, we have vanilla & raspberry soup in a lady finger bowl.
• Baked pumpkin and apple pies, they look great.
• Not sure how I'll transport all of this. But, I sure won't have to do too much cooking tomorrow.
• Nick, after watching a Bob-the-Builder episode where Loft falls off a bridge, kept racing into the kitchen with his toy shopping cart. Tipping it over saying "Oh no, what a mess." Coming up to me, telling me "Heavy, help, what to do?" And then I'd help him turn it upright. After about the 20th time M.E. was fed up and would upright it before he could. Nick would give her an evil, eye race out of the kitchen and then come back in again, until she was tired of it.
• Just turned out the lights on two readers, was told I was so mean because their books are so good.

Still Chuckling

The period of time after Nick's birth was one of my lowest, I didn't know what he would be capable of and would I love him enough. But, I was sure things were going to be alright and wished my future self could come and reassure me. Today, Nick's teacher told me about something Nick did that would make a good story for the future me to tell to the past me.

Today was the Thanksgiving lunch at Nick's school. As soon as she saw me, Nick's teacher said "I have to tell you what your son did today." "Oh, oh," I said. She replied, "Oh, it's a good story, you will really laugh."

Lately, Nick become much more interactive with others, to the point of ordering us to do what he wants. He's also, been engaging in more pretend and imaginative play.

Apparently, he walked over to his teacher with a broom in one hand and a play microphone in the other. He told his teacher, "Sing, Dog Out." Which means "Sing, 'Who let the dogs out.'" So she did, while he accompanied her pretending to play the guitar using the broom. And wouldn't let her stop for nearly 10 minutes. Boy, do I wish we had a video.

Hooray! Me!!

Sometimes, I think that having as much therapy as Nick has has made him a bit of a praise junky and when he can't get it from someone else he'll praise himself. 

Nick has made great strides with fine motor lately, especially holding a fork & spoon. The other night he had a bowl of cereal after dinner. He ate a few spoonfuls without spilling and suddenly put his hands up in the air and said "Hooray! Me!" He continued to eat a few more spoonfuls and repeat the "Hooray! Me!" several more times. By the end we were all joining in.

Daisy & Nick

Daisy, the dog, and Nick have a relationship that can best be explained as sibling rivalry. They seem to tussle over toys just like sibs do. The other day, Nick commandeered one of my laundry baskets and was pretending to be a turtle.
Daisy came in with a toy. And before she knew what happened, a small arm shot out from under the laundry basket and snatched away her toy.
Where'd it go? She could smell it, and hear Nick's giggles.
Ah, there it is..
It's just Nick. This went on for several more rounds until Daisy ran off with her toy.

Rascal

Nick is a thumb and finger sucker. We've been working on getting him to stop, with little success. When told to take his hand out of his mouth, he used to take his hand out. Lately, when reminded he will put BOTH hands in his mouth, and adds a saucy grin!

One Man Band

This is from this summer, I can't figure out how to turn upright, it so here it is anyway.